Pulmonary Fibrosis

The UofL Physicians – Pulmonary Fibrosis Care Center is one of nine pilot sites selected by the Pulmonary Fibrosis Foundation (PFF) for its newly established Care Center Network and Patient Registry program. We were selected because of our expertise in pulmonary fibrosis patient care and research, and the dedication of our world-renowned pulmonary doctors.

Aimed at improving the health and quality of life of patients suffering from pulmonary fibrosis, the network and registry will help provide critical insights enabling the medical research community to develop more effective therapies.

To make progress, there is a need for a multidisciplinary approach by teams of expert medical professionals, more data and to track the natural history of the disease. The PFF Care Center Network and Patient Registry and the UofL Physicians – Pulmonary Fibrosis Care Center will provide these critical cornerstones for improved patient care and progress toward a cure.

The benefit of the UofL Physicians – Pulmonary Fibrosis Care Center to patients is that they can contribute to the effort and partner with us in identifying new areas for intervention, becoming an integral part of their care.

The UofL Physicians – Pulmonary Fibrosis Care Center is part of an esteemed network that includes: the University of California, San Francisco; the University of Chicago; the University of Michigan; National Jewish Health; the University of Pittsburgh; Vanderbilt University; the University of Washington; and Yale University. For more information about the Care Center Network and Patient Registry, and the Pulmonary Fibrosis Foundation, visit www.pulmonaryfibrosis.org.

Affecting up to 200,000 people in the U.S., pulmonary fibrosis is a condition in which lung tissue becomes thickened, stiff and scarred. In most cases, there is no known cause and the disease is termed idiopathic pulmonary fibrosis. The lung damage caused by pulmonary fibrosis cannot be reversed, and while there are medications that can help ease symptoms, there is no cure. 

The disease is relentlessly progressive and can lead to respiratory failure and death within two to five years from the time of diagnosis. Annually, 40,000 people die from pulmonary fibrosis – the same number of deaths caused by breast cancer each year.

As part of the Pulmonary Fibrosis Foundation Care Center Network, the UofL Physicians – Pulmonary Fibrosis Care Center provides a standardized, multidisciplinary approach to patient care. This model of comprehensive patient care will help identify and establish best practices, determine the impact of specific interventions and improve the quality of life of patients. The Care Center Network will expand to include 40 medical centers by 2015.

The Patient Registry is planned to be the largest database of pulmonary fibrosis patient records with the furthest demographic reach in the country. It will provide data essential for improving the understanding of the epidemiology, incidence, prevalence, natural history and other clinical characteristics of pulmonary fibrosis. The registry will use consistent data-gathering methodology so the information obtained will be useful to all clinicians and researchers seeking to better understand the disease and develop new therapies for pulmonary fibrosis.

The UofL Physicians – Pulmonary Fibrosis Care Center, and all the pilot sites of the Care Center Network, participate in the Patient Registry. A principal investigator will work with the team of health professionals to enroll patients in the registry. The Duke Clinical Research Institute at Duke University will host and maintain the Patient Registry and oversee its implementation.

Physicians in this practice may not see patients at all locations listed below. For details, please call the appointment line for the location you are interested in visiting.

Physicians in this practice may not see patients at all locations listed below. For details, please call the appointment line for the location you are interested in visiting.

Offices and Clinics

  • Main Office
    401 E. Chestnut St.
    Louisville, Kentucky 40202
    502-588-4600
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  • AIM Clinic, Ambulatory Care Building
    550 S. Jackson St.
    Louisville, Kentucky 40202
    502-561-8686
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  • 333 E. Market St.
    6th Floor
    Louisville, Kentucky 40202
    502-562-3792
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Hospital Affiliations

  • University of Louisville Hospital
  • Jewish Hospital
  • Norton Hospitals
  • Veterans Administration Medical Center
  • Frazier Rehab Hospital
  • Kindred Hospital

UofL Physicians has recruited pulmonologists from some of the finest pulmonary training programs in the country to provide our patients with outstanding clinical care. In addition to general pulmonary medicine, each of our pulmonologists has a particular sub-specialty they are known for on a regional, national, and in some cases international, level.

Our pulmonologists also are professors and researchers at the University of Louisville School of Medicine, teaching tomorrow’s physicians and leading research into medical advancements.

Dr. Rafael Perez leads the UofL Physicians - Pulmonary Fibrosis Care Center.

 

 

Next Steps

For more information or to make an appointment,
call 502-588-6000